There are many places that do Service Coordination Rochester. My brother gets
service coodination through Depaul. Jacob is in a program called Avenues to
Independence. Jacob service coodinator's name is Julie. Julie visits Jacob at
home or at school every month. Through Depaul Jacob gets Medicaid because of
his autism. Julie does all the paperwork for this. Julie also attends Jacob's
school CSE meetings to ensure that Jacob gets the best educational services
available to Jacob. Through Depaul Jacob can get respite, reimbursement, as
well as other benefits.
To visit Depaul's website check out
Depaul.org
to learn about the services available to your special child.
Finger Lakes Developmental Disabilities Service Office
In order to get service coordination, you must first go through
an agency called the DDSO. Finger Lakes Developmental Disabilities
Service Office (DDSO), as a unit of the New York State Office of Mental
Retardation and Developmental Disabilities, is responsible for developing
and providing comprehensive services for individuals with developmental
disabilities--mental retardation, autism, cerebral palsy, epilepsy, and
other neurological impairments constituting a lifelong mental or physical
impairment that becomes apparent prior to age 22. The Finger Lakes DDSO takes
care of Monroe county. The process is long and could take months, but it is
worth it, to have that extra support for your child. The DDSO will give you a
list of agencies, and you choose 1 that will represent you.
Did you know that you can get free access to all NYS Parks, if your
child has a disability. We take Jacob to Hamlin Beach all the time, and
we get free admittance, due to Jacob having autism. Jacob loves the beach.
We recieved the pass about 3 weeks, after we applied.
An Access Pass permits a resident of New York State with a permanent
disability free use of parks, historic sites and recreational facilities
operated by the New York State Office of Parks, Recreation and Historic
Preservation and the Department of Environmental Conservation. The
passholder may have free use of facilities operated by these offices for
which there is normally a charge (for example; parking, camping, greens
fees and swimming). To qualify for an Access Pass, an applicant must be
a resident of New York State and must provide proof of disability in the
form of certification from the appropriate agency, or by verification of
disability by a physician.
For complete information on the criteria for eligibility and an
application, contact:
Access Pass
Parks, Recreation and Historic Preservation
Empire State Plaza
Agency Building 1
Albany, New York 12238
UPDATED INFORMATION
You can pick up a application for the access pass at Hamlin Beach State
Park. You have to send the application in with appropriate documentation
and they will send you a access pass. When you pick up the application
you will not get free amittance at that time. This takes about 3 weeks to
process. You will be
Possible Handicapped Parking for those with autistic children.
Jacob is autistic mod-severe. Two years ago we became very concerned about
Jacob having issues in parking lots. Jacob would try to bolt or sometimes
breaks down in the parking lot, when there is a lot of activity. We always
hold Jacobs hand, but he would always try to pull away. When we told our
concerns to Jacob's Doctor at Kirsh Developmental Center, he sent us the form
to go to the DMV all filled out. With our situation, he wanted Jacob to be safe.
Even now Jacob still tries to pulls away or breaks down in the parking lot.
Financial Assistance is available to anyone based on family income, number of
household members, and the availability of funds. Currently my family has a
a discount membership. All information is kept confidential. The Northwest
YMCA has many programs, including 2 pools and a huge fitness center and more.
To find out more about the NorthWest YMCA,
Click Here
To Find out more about the financial requirements,Click Here
2007 Rochester Walk Now for Autism
We did the walk for Autism of 9/29/2007 and after 6 weeks of fundraising,
we raised $170. Go Team - Kids Can Dream. Our neighbors also raise over $100
Thank you to family and friends who sponsored us.
Autism Walk Pictures
We bought a membership and love it there. We go there in the fall
and winter often. These are last years pictures of Jacob and us the
museum. If have not been there, I think you would really like it.
Autism Awareness Cards are cards used in public places, when a autistic
child breaks down, and has a tantrum do to being over stimulated. This could
be because the lights are too bright, or there are too many people. These are
handy if you get comments by people, or dirty looks. You can either print them
out on card stock or laminate them Free Printable Autism Awareness Cards
Operation Child Safe
Keep your child safe. Walmart had a team of Operation Child Safe officers
at there Greece Store. They were taking pictures and finger prints. We waited
in line for about 10 minutes and mom left with 3 ID cards. We are now registered
with the NYS police. We wanted to have my autistic brother Jacob registered, because
he attempts to bolt. This was easy to do. Check out the Safe Child Website here Click Here
Need a item, why buy new, when a friend from Rochester NY Re-Use It,
may have just what you need. You must join the yahoo group. Rochester NY Reuse It
Angel Food Program.
For $25, individuals receive a box of food consisting of both fresh and
frozen items in a variety including chicken, beef, noodle dishes, dessert,
pancake mix, vegetables, pizza and lasagna. The item selections change on a
monthly basis. The foods are first quality, and there are no out-of-date items
included. It is not income based.
Call the church at 637-9785 for information.
